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Two Conferences Under One Roof – One Devoted to Patient Registries, One Devoted to Real World Evidence

January 30-31, 2019
  • Miami, FL

Thomas A. Abbott
Head, Capabilities & Alliances
Astellas US LLC

Diane Alejo
Director, Information Technology
Johns Hopkins University School of Medicine

Elise Berliner, PhD
Director of the Technology Program,
Center for Outcomes and Research Evidence
Agency for Healthcare Research and Quality (AHRQ) (invited)

Vanessa Boulanger
Director of Research Programs
National Organization for Rare Disorders (NORD)

J. Alexander Cole, DSc, MPH
Senior Director and Global Head, Epidemiology
Alexion Pharmaceuticals

Omar Dabbous
Vice President, Global Health Economics and
Outcomes Research and Real World Evidence
AveXis, Inc.

Jane Fang
MedImmune R&D IS Head for Clinical Biologics
AstraZeneca

Hugh K. Findlay, RN, BS, CCRA
Associate Director, Regional Registry Site Operations
Sanofi Genzyme

Susan Fish
Associate Director, Registries and
Real-World Data Collaborations, US Medical Affairs
Celgene Corporation

E. Dawn Flick, RPh, MPH, ScD
Senior Director, Registries and
Real-World Data Collaborations, US Medical Affairs
Celgene Corporation

Pat Furlong
Founding President & CEO
Parent Project Muscular Dystrophy

Joseph D. Giuliano
Senior Director, Global Medical Operations and Patient Registry
Amicus Therapeutics

Richard Gliklich, MD
CEO
OM1

Christoph Koenen, MD
Head of Cardiovascular Development
Bristol-Myers Squibb

Aaron Leibtag
CEO, Cofounder
Pentavere Research Group Inc.

Larry Pickett
CEO
RxDataScience

Badri Rengarajan, MD
Medical Lead, Aspire Unit
Actelion

Monica St. Claire
Product Lead, Insights Innovation
Inspire

David Thompson, PhD
Senior Vice President, Head of Thought Leadership
Syneos Health, Real World & Late Phase

Renee Willmon, MSc, PhD Candidate
Manager of Behavior Science
Self Care Catalysts Inc.

Ashley Winslow, PhD
Senior Director, Translational Research &
Portfolio Development, Orphan Disease Center
University of Pennsylvania School of Medicine

Thomas A. Abbott
Head, Capabilities & Alliances
Astellas US LLC

Diane Alejo
Director, Information Technology
Johns Hopkins University School of Medicine

Elise Berliner, PhD
Director of the Technology Program,
Center for Outcomes and Research Evidence
Agency for Healthcare Research and Quality (AHRQ) (invited)

Vanessa Boulanger
Director of Research Programs
National Organization for Rare Disorders (NORD)

J. Alexander Cole, DSc, MPH
Senior Director and Global Head, Epidemiology
Alexion Pharmaceuticals

Omar Dabbous
Vice President, Global Health Economics and
Outcomes Research and Real World Evidence
AveXis, Inc.

Jane Fang
MedImmune R&D IS Head for Clinical Biologics
AstraZeneca

Hugh K. Findlay, RN, BS, CCRA
Associate Director, Regional Registry Site Operations
Sanofi Genzyme

Susan Fish
Associate Director, Registries and
Real-World Data Collaborations, US Medical Affairs
Celgene Corporation

E. Dawn Flick, RPh, MPH, ScD
Senior Director, Registries and
Real-World Data Collaborations, US Medical Affairs
Celgene Corporation

Pat Furlong
Founding President & CEO
Parent Project Muscular Dystrophy

Joseph D. Giuliano
Senior Director, Global Medical Operations and Patient Registry
Amicus Therapeutics

Richard Gliklich, MD
CEO
OM1

Christoph Koenen, MD
Head of Cardiovascular Development
Bristol-Myers Squibb

Aaron Leibtag
CEO, Cofounder
Pentavere Research Group Inc.

Larry Pickett
CEO
RxDataScience

Badri Rengarajan, MD
Medical Lead, Aspire Unit
Actelion

Monica St. Claire
Product Lead, Insights Innovation
Inspire

David Thompson, PhD
Senior Vice President, Head of Thought Leadership
Syneos Health, Real World & Late Phase

Renee Willmon, MSc, PhD Candidate
Manager of Behavior Science
Self Care Catalysts Inc.

Ashley Winslow, PhD
Senior Director, Translational Research &
Portfolio Development, Orphan Disease Center
University of Pennsylvania School of Medicine