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Improve Patient Data Sharing to Generate Meaningful Outcomes

December 5-6, 2017
  • Philadelphia, PA

The 3rd Annual Patient Registries Summit convenes stakeholders who use registry data to advance research and patient care. Don’t miss the opportunity to be on the cutting edge with those examining whether a new treatment is being appropriately used in a particular population. Learn more about how registry data is being used to improve outcomes including important issues such as:

  • Patient data safeguards
  • Rising costs of running registries
  • Opportunities for collaboration
  • Natural history studies
  • Legal and regulatory issues regarding data sharing
  • Real world evidence
  • Post marketing surveillance
  • Government initiatives to build registries
  • Electronic health records

Previous Attendee Acclaim:

It is important to have a meeting like this that brings registry-experienced folks together to share information on the wide breadth of registries, to share lessons learned on past studies and to shed light on the directions registries are evolving.

Senior Director Registries, US Medical Affairs, Celgene

The passionate energy of the presenters and
attendees was very inspiring.

Senior Director, Program Management, PROS Foundation

I transitioned from clinical research to project manager for our rare disease registry. This conference gave me a really good overview of the different types of registries.

Project Manager, Sanford Research

I am new for registry studies, although I have many years
in the randomized, controlled trials. I learned a lot
and networked with experts in this field.

Medical Director, Janssen Pharmaceuticals

December 5-6, 2017 Philadelphia, PA

3rd Annual Patient Registries Summit

Improve Patient Data Sharing to Generate Meaningful Outcomes

The 3rd Annual Patient Registries Summit convenes stakeholders who use registry data to advance research and patient care. Don’t miss the opportunity to be on the cutting edge with those examining whether a new treatment is being appropriately used in a particular population. Learn more about how registry data is being used to improve outcomes including important issues such as:

  • Patient data safeguards
  • Rising costs of running registries
  • Opportunities for collaboration
  • Natural history studies
  • Legal and regulatory issues regarding data sharing
  • Real world evidence
  • Post marketing surveillance
  • Government initiatives to build registries
  • Electronic health records

Previous Attendee Acclaim:

It is important to have a meeting like this that brings registry-experienced folks together to share information on the wide breadth of registries, to share lessons learned on past studies and to shed light on the directions registries are evolving.

Senior Director Registries, US Medical Affairs, Celgene

The passionate energy of the presenters and
attendees was very inspiring.

Senior Director, Program Management, PROS Foundation

I transitioned from clinical research to project manager for our rare disease registry. This conference gave me a really good overview of the different types of registries.

Project Manager, Sanford Research

I am new for registry studies, although I have many years
in the randomized, controlled trials. I learned a lot
and networked with experts in this field.

Medical Director, Janssen Pharmaceuticals

December 5-6, 2017 Philadelphia, PA