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Patient-Centric Strategies for Early Access and Product Launch

June 12-13, 2019
  • Boston, MA

Hear Cutting-Edge Insights and
Discuss Key Challenges:

  • Create a Foundation for Success and Explore Innovative
    approaches to Orphan Drug Commercialization
  • Activate Specific Leverage Points in Commercializing
    Rare Disease Portfolios
  • Understand the Impact of Patient Engagement on
    Product Valuation
  • Delve into Next-Generation Models for Collaboration
    with Patients and Advocates
  • Examine Evolving Reimbursement Trends for
    Rare Disease Products
  • Learn About Innovative Opportunities to Demonstrate Value
    for Rare Disease Products to Support Market Access

Previous Attendee Acclaim:

I thought this was one of the best conferences I’ve attended over the years. The focus was very practical and each speaker shared real world examples instead of theory. It was well organized and the passion each participant has for helping people with rare disease was very evident.

Vice President, Regulatory Affairs, North America, Sobi, Inc.

The Rare Disease Innovation Summit provided the opportunity for cross communication between industry, nonprofits and vendors who bridge the gap between the two. From presentations to panels, every attendee walked away with new information and resources to help improve the quality of life for the rare disease community. Thank you for making this possible CBI!

President & CEO, Tuberous Sclerosis Alliance

The inaugural Rare Disease Innovation Conference brought together multidisciplinary stakeholders to discuss important issues challenging the rare disease ecosystem. The contributions by the audience accelerated thinking how to address and eventually resolve key access related issues impacting people in desperate need of therapeutic options.

Senior Vice President, Global Business Operations and External Affairs, Horizon Pharma

Most amazing were the voices from the patient community who are driving drug discovery and access. What some doing for a few benefits us all in this rare space. CBI’s Summit was a prime example of how the patients are critical to informing the research and development dialogue but also vice versa. We need to know the innovations planned and in progress.

President & CEO, Canadian Organization of Rare Disorders

The rare Innovation summit is an intimate engaging meeting facilitating discussion amongst speakers and attendees – nice mix of industry and patient groups especially stakeholders I haven’t met before at other meetings.

- Global Medical Lead, Patient Engagement, Rare Diseases, Pfizer

Rare Disease Innovation Summit

Patient-Centric Strategies for Early Access and Product Launch

Hear Cutting-Edge Insights and
Discuss Key Challenges:

  • Create a Foundation for Success and Explore Innovative
    approaches to Orphan Drug Commercialization
  • Activate Specific Leverage Points in Commercializing
    Rare Disease Portfolios
  • Understand the Impact of Patient Engagement on
    Product Valuation
  • Delve into Next-Generation Models for Collaboration
    with Patients and Advocates
  • Examine Evolving Reimbursement Trends for
    Rare Disease Products
  • Learn About Innovative Opportunities to Demonstrate Value
    for Rare Disease Products to Support Market Access

Previous Attendee Acclaim:

I thought this was one of the best conferences I’ve attended over the years. The focus was very practical and each speaker shared real world examples instead of theory. It was well organized and the passion each participant has for helping people with rare disease was very evident.

Vice President, Regulatory Affairs, North America, Sobi, Inc.

The Rare Disease Innovation Summit provided the opportunity for cross communication between industry, nonprofits and vendors who bridge the gap between the two. From presentations to panels, every attendee walked away with new information and resources to help improve the quality of life for the rare disease community. Thank you for making this possible CBI!

President & CEO, Tuberous Sclerosis Alliance

The inaugural Rare Disease Innovation Conference brought together multidisciplinary stakeholders to discuss important issues challenging the rare disease ecosystem. The contributions by the audience accelerated thinking how to address and eventually resolve key access related issues impacting people in desperate need of therapeutic options.

Senior Vice President, Global Business Operations and External Affairs, Horizon Pharma

Most amazing were the voices from the patient community who are driving drug discovery and access. What some doing for a few benefits us all in this rare space. CBI’s Summit was a prime example of how the patients are critical to informing the research and development dialogue but also vice versa. We need to know the innovations planned and in progress.

President & CEO, Canadian Organization of Rare Disorders

The rare Innovation summit is an intimate engaging meeting facilitating discussion amongst speakers and attendees – nice mix of industry and patient groups especially stakeholders I haven’t met before at other meetings.

- Global Medical Lead, Patient Engagement, Rare Diseases, Pfizer