• Discuss the significance of educating patients about their disease and opportunities for participation in clinical trials.
• Feedback from patients on what would make them more comfortable joining a trial and did this make a difference to ease of recruitment?
• Explore strategies for effectively communicating disease knowledge to patients, ensuring they understand the importance of their involvement in research? How to better inform potential patients of the benefits of being involved in a clinical trial?
• Address common challenges in patient understanding of clinical trials.
• Explore innovative methods such as videos and animations for patient education.

Be honest: are you also worried that your clinical trial may become infeasible when you discuss your protocol with patients and they come up with their demanding ideas and comments that often impact the costs and timelines? Then involve them earlier! Ask them the pertinent questions and truly listen to what they have to say. Have an open mind. A compelling case study in a paediatric rare disease investigation underscores this approach.

This session will highlight products and/or services from KOLs in the industry. To showcase your solution based case study please contact Linda.Cole@informa.com and Neha.Singh@informa.com.

A presentation that covers why clinical trials are struggling with patient recruitment, diversity in the trial participant population and retaining trial participants and how all of these problems are linked to the overall system which clinical trials are formed around and how to improve and move forward.

This session will highlight products and/or services from KOLs in the industry. To showcase your solution based case study please contact Linda.Cole@informa.com and Neha.Singh@informa.com.

This presentation will:

• Introduce a patient engagement measurement framework that was co-created with patient advisors and a cross-functional team.
• Bring it to life through an example of patient input into clinical trial protocol.
• Discuss metrics, tools, methods, opportunities and potential challenges with measurement implementation.

Hear observations and practical advice from an independent patient engagement facilitator and gain insight into public attitudes to commercial research among underserved communities. These two aspects are combined to provide practical advice on how to ensure your engagement activities are a positive and meaningful experience for all involved.

This session will look at the specific challenges faced in clinical trials for 3 key disease areas. Each comes with different considerations given it’s effect on the patient and might require different needs from both researchers and patients during the trial process: Cancer/Neurodegenerative Disorders, Long-term Chronic conditions and Rare Diseases.

Spotlight: Cancer Addressing Survivorship and Quality of Life Endpoints

Spotlight: E.g. Diabetes/Eczema How To Keep Patients Enrolled and Reduce Trial Burden

Spotlight: Rare Disease Where To Find Enough Patients?